I typed this out this morning to give to Logan's new GI specialist so that I don't forget anything. Since I know some of you have not been in the loop for everything, I thought I would post it here as well. It was written for medical purposes though, so be forewarned that some of it is probably TMI!!! I will update everyone this afternoon after his appointment. Thanks as always for all your help and support.
- Logan has been
100% breastfed since birth. He takes four 4 oz. bottles of expressed milk
each weekday while I work.
- Logan is not in
daycare or any other group child-care situations.
- Logan has had
all immunizations as scheduled.
- Between birth
and 2 months, Logan had 6 casts and a brace to correct his right club
foot. He also had a right Achilles tenotomy at 6 weeks. He is still
in the brace 14-16 hours a day under the care of Dr. Epps at Texas
Children’s orthopedic clinic.
- Logan was
re-hospitalized for jaundice treatment (bili-blanket and lights) at 3
days. He was released after 24 hours.
- Logan has been
high-needs since birth, but because of all the issues with his foot,
difficulty sleeping, etc. it took us a long time to realize that there was
definitely something else going on. (tried
“No Cry Sleep Solution,” “Happiest Baby…” etc. I eliminated caffeine.)
- Logan’s BMs went
from the normal yellow seedy breastmilk BM to a greener version and then
to a mucousy green by about 2 months.
- Beginning at
about a month (and lasting for 4-6 weeks), Logan had a recurring rash on
his cheeks, stomach, and chest that we thought was a heat rash and
diminished each time with hydrocortisone cream. I remember wondering if it
might be an allergy and dismissing the thought as too uncommon.
- At about 2.5
months, once things settled down with his foot and the brace (and as he
began to stay awake longer periods) we began to realize that Logan was
only happy for small, isolated moments during the day, usually totaling
only about an hour out of every 24 hours. He was also forcefully spitting
up large amounts at an increasing rate.
- At 2.5 months, I
decided to try an elimination diet to see if my earlier inclination about
allergies might have been correct. I was on turkey, rice, potatoes, and
pears for 2 weeks. Within the first 4-5 days, Logan’s mood changed
drastically for the better as did his BMs. He stopped spitting up
entirely. He also began to sleep for at least one 4-5 hour stretch at
night.
- Logan’s first
round of testing, at about 3 months, a childhood allergy panel, came back
negative for everything except a mild reaction to peanuts.
- As soon as I
re-introduced dairy, he went back to screaming and green, mucousy diapers
after about 24-36 hours. I eliminated dairy again. I tried
re-introducing gluten and then corn, soy, fruits, etc. Logan’s mood stayed
much better most days and the spit-up stopped but his BMs continued to
test positive for blood and gradually his stretch of sleep at night has
shortened again.
- For the past 6-8
weeks, Logan has had a terrible diaper rash. We have tried all the
over-the-counter remedies, Lotrimin on recommendation from the pediatrician
who thought it might be yeast, and a prescription for
- In the past 3
weeks or so, Logan has been having more and more rough days and nights
when he seems unable to get comfortable. He seems to be having very
painful gas that is also foul smelling. He has also developed a pattern in
which he appears constipated for 1-2 days and then has a huge, often
visibly blood tinged (though only specks), very mucousy BM.
- Logan had more
testing done last Friday based on our pediatrician’s list of foods I ate
regularly. Results are not back yet.
- A week ago,
after reading about Milk Soy Protein Intolerance, I tried re-eliminating
soy from my diet. Logan’s symptoms have peaked in the last week. Several
nights, he has only been able to sleep while being held and rocked or
walked in our arms. He has also been arching his back and crying while
nursing and afterwards. My only theory is that I have been eating more
corn since eliminating soy.
HI! I talked to you on your cousin's facebook :-) Im so glad you got into see the g.i. doctors! Neocate is the formula that saved Levi and continues to be his primary nutrition at 25 months.
ReplyDeleteBut dont think that by using formula you took the easy way out. Solid foods will be very tough because you have to slowly introduce new foods over weeks rather than days. Think of using
formula as your break. It will hopefully give his g.i. system the rest it needs to start tollerating other foods again.
Also if you have any trouble with getting Neocate make sure you talk to the company! Unfortunately Texas families have trouble getting their insurance to cover Neocate, but Neocate has a program to help if your insurance refuses.
Best of luck to you!!